Oh my goodness, this last week has been a crazy week. We loved spending time with Shane's family for New Years. Taylor enjoys playing and being crazy with her older cousins.
We received a call that Thomas was pooping out blood and that they were going to do tests to see what was going on. Everything came back normal AND it didn't happen any other times so they're not worried about it anymore. When they called to tell me this they also called to tell me that Thomas was going to be released in the next week. WHAT?!!!
He's done so well since the week of Christmas on his breathing that he's finally down to no pressure, and only the lowest setting possible of oxygen. Thomas is also gaining weight and maintaining his body temperature fine so he has the green light to go home. Yes, he still has OI and always will but he's stable enough to come home to us.
Thomas will be coming home later this week on oxygen and a feeding tube. Shane and I will be trained on how to manage those, his pain, and his hernias. Thomas can't have any surgeries until he's older so for now it's making sure Thomas heals, gets stronger, and that we prevent any new fractures as best we can.
Later this week we will get an answer to the big question- if Thomas has Type II OI (which is lethal). If he does, Thomas is a really rare case because most babies die within 48 hours with that type. He likely wouldn't live past his 1st birthday. Thomas shows a lot of characteristics of Type II and Type III so we're hoping that he has Type III since that one is survivable.
Our little boy did get moved to a regular hospital room though where he just has one other baby neighbor. We have a lot more room, privacy, a crib, soothing music, toys to look at, and a more calming environment. We are so grateful to the NICU for helping our boy survive this long and for the support they gave us, but we are GLAD we are outta there!
Today was a special Sunday for our family- Taylor started Sunbeams and today was the last Sunday that we had to go visit Thomas as an inpatient. :) So many miracles have taken place in the last few weeks that I can't even count... We know Heavenly Father is aware of our family and watching over Thomas no matter what happens. Thomas is such a strong little boy and I will forever be grateful for this time with him.
